Midterm Evaluation Abaqulusi Child Survival Program Salvation Army World Service Office KwaZulu Natal Province, South Africa COOPERATIVE AGREEMENT # HFP 0 A – 00 – 02 – 0040 – 00 START DATE – OCTOBER 1, 2002 END DATE – SEPTEMBER 30, 2007 Submitted by: Richard Crespo, Ph.D. Lead Evaluator June 27 – July 15, 2005 2 Table of Contents A. Summary.................................................................................................................................... 3 B. Assessment of the progress ....................................................................................................... 4 1. Technical approach................................................................................................................ 6 a. Exclusive Breastfeeding...................................................................................................... 7 b. Diarrhea Control ................................................................................................................. 9 c. Washing Hands ................................................................................................................. 10 d. Acute Respiratory Infections ............................................................................................ 11 e. Immunizations................................................................................................................... 12 f. HIV/AIDS.......................................................................................................................... 13 g. Revised Measurable Objectives........................................................................................ 17 2. Cross-cutting approaches..................................................................................................... 19 a. Community Mobilization.................................................................................................. 19 b. Communication for Behavior Change .............................................................................. 19 c. Capacity Building Approach............................................................................................. 20 e. Sustainability Strategy ...................................................................................................... 22 C. Program Management ............................................................................................................. 23 1. Staffing.................................................................................................................................. 23 2. Health Information System.................................................................................................. 23 D. Additional Issues as identified by the evaluation team........................................................... 24 E. Conclusions and recommendations ......................................................................................... 24 F. Results Highlights.................................................................................................................... 26 3 A. Summary The Abaqulusi Child Survival Program (ACSP) is located in northern Kwa-Zulu Natal in the Republic of South Africa. The program’s goals are to reduce the morbidity and mortality of 27,242 children under five years of age and 37,816 women aged 15 – 49 years and to prevent the spread of HIV and other sexually transmitted diseases. This project has five interventions: control of diarrheal disease (20% effort), control of acute respiratory infections (10% effort), childhood immunizations (20% effort), exclusive breastfeeding (10% effort) and HIV/AIDS (40% effort). Solid progress is being made in immunizations, control of diarrheal disease and HIV/AIDS prevention among young people. The data on ARI are mixed. The midterm LQAS survey indicates negligible change but the midterm field survey indicated a high level of behavior change among mothers who are monitored by CHWs. The ACSP team will monitor this indicator more closely in its surveillance system. Behavior change in exclusive breastfeeding is potentially complicated if a high proportion of mothers work or are in school. This report recommends investigating what percentage of mothers are away from their children during the day and distinguishing between mothers who can have their infants with them all day and those who do not. Additionally the ACSP team is in the process of refining its behavior change strategy regarding benefits and barriers to exclusive breastfeeding. Following is a summary of the ACSP programmatic accomplishments. 1. Training CHWs: They had received very little supervision prior to this project. Through training workshops and one-on-one training their skills have improved in following up sick children, health communication and growth monitoring. 2. Immunizations: Training the CHWs to monitor immunizations and follow up drop-outs has contributed to increased coverage. 3. Work in the schools on HIV: The mentors who facilitate learning sessions weekly in the schools have been a great asset. They are volunteers, but have been faithful in their teaching. The interactive style has generated an openness to talk about sex and HIV in a healthy way. A number of youth have sought counseling from the mentors because they have been abused. 4. The mentors have a strong sense of being part of a team and are enthusiastic about their work. 5. The program staff members are known in the community. They feel welcomed in the communities and schools and are respected for their contributions. 6. Training pastors in HIV/AIDS: Pastors have welcomed the training; attitudes and actions have changed. 7. Health monitoring system: The project staff has created a system for family registries and data reporting. There was no functional system prior to this project. 4 B. Assessment of the progress The program is located in the Abaqulusi Municipality of District Council 26 in northern Kwa￾Zulu Natal in the Republic of South Africa. Its goals are to reduce the morbidity and mortality of 27,242 children under five years of age and 37,816 women aged 15 – 49 years; to prevent the spread of HIV and other STIs; and to provide assistance to orphans and vulnerable children, especially those who have been affected by the HIV epidemic. Background The program is divided into five supervision areas: Vryheid, Mondlo, Mvunyane, Lowsburg, and Hlobane. The five areas are served by 104 Community Health Workers (CHWs), who receive a salary from the Department of Health. Three Community Health Facilitators from the project staff supervise the CHWs. The Department of Health has the responsibility of assigning two additional Community Health Facilitators, but they do not have transport and do no supervision in the field. The ACSP’s principal local partners consist of The Salvation Army/Southern African Territory, the South African Departments of Health, Education and Social Welfare and Lethempilo Youth Organization. ACSP also coordinates closely with traditional authorities and church groups, especially those involved in home-based care. Culturally, the area is predominately Zulu. English is spoken only by professionals and people living in the major town, Vryheid. Thirty-five percent of the population is peri-urban (townships) and 65 percent is rural. Paved roads connect most of the townships with Vryheid. A major gap exists between rural and peri-urban areas in terms of water and sanitation services, with a much larger proportion of families in rural areas having no water other than surface water, and having to walk long distances to obtain that water. Data from the DIP indicate that only 30.6% of families had access to piped water (including those with communal pipes), and for 29.1%, surface water (such as lakes, streams and rivers) was their only water source. Only 24.4% of families had safe sanitation facilities, defined as flush toilets or VIP latrines. The infant and child mortality rates for the province are higher than those from the country as a whole. The number of tuberculosis cases in the program area is rising sharply, and rising HIV prevalence rates are creating a crisis situation as increasing numbers of mothers of young children begin to manifest signs of active AIDS. Summary of Progress In April 2005 the project staff conducted a mid-term KPC survey. Table 1 on the following page presents the findings from that survey. 5 Table 1: Comparison of baseline and mid-term indicators. Indicator Baseline Mid-term Percent Pt. Diff. Target Percentage of children age 12-23 months who received a measles vaccine 63 79 16 N/A Percentage of caregivers reporting increased liquids during child’s illness in the past two weeks 9 28 20 N/A Percentage of caregivers of children age 0-23 months who cite at least two known ways of reducing the risk of HIV infection 31 46 15 60% Percentage of children age 12-23 months who are fully vaccinated (against the five vaccine-preventable diseases) before the first birthday 63 75 12 80% Percentage of caregivers who would allow their child to play with a child who was HIV positive 55 67 13 80% Percentage of caregivers who mention fast/difficult breathing as a sign that indicates the need for treatment 7 11 3 N/A Percentage of mothers of children age 0-23 months who wash their hands with soap/ash before food preparation, before feeding children, after defecation, and after attending to a child who has defecated 1 1 0 50% Percentage of caregivers who know at least two signs of childhood illness that indicate the need for treatment 37 35 -2 70% Percentage of children age 0-5 months who received only breast milk in the last 24 hours 34 31 -3 50% Percentage of ninth graders who name at least two of the three main programmatic ways to prevent HIV (abstinence, faithfulness, condoms) N/A 49 Percentage of ninth grade girls who name at least two of the three main programmatic ways to prevent HIV (abstinence, faithfulness, condoms) N/A 45 Percentage of ninth grade boys who name at least two of the three main programmatic ways to prevent HIV (abstinence, faithfulness, condoms) N/A 54 Percentage of ninth graders who are virgins 68 72 4 80% Percentage of ninth grade girls who are virgins 83 80 -3 90% Percentage of ninth grade boys who are virgins 48 63 15 70% The data in this table reflect progress in vaccinations, increased liquids during illness, knowledge of HIV prevention among caregivers and attitudes about children with HIV. Another encouraging result is the increase in the number of ninth grade boys who state that they are virgins. Indicators that do not reflect progress are recognition of fast/difficult breathing, washing hands, recognition of signs of illness and exclusive breastfeeding. 6 Regarding exclusive breastfeeding, a potential barrier is that some mothers either work or are in school. Refer to Section B.1.a for a discussion of this barrier and recommendations for more detailed surveillance on behavior change. Regarding the indicator on knowing two signs of childhood illness, refer to Section B.1.b., d., and g. for a discussion and the recommendation that this indicator differentiate signs of dehydration and ARI. Also refer to mid-term survey data on the number of mothers who identified wheezing type of cough and stated that they took their child to the clinic for treatment in Section B.1.d. The project staff team has laid a solid foundation for improvements in community health. While this report identifies a number of challenges, these should not minimize the value of the progress that has been made thus far. 1. Technical approach The program strategy in the DIP was to work through the Department of Health and local NGOs to strengthen the work of the CHWs. The reality at the mid-term is that project staff has mostly worked directly with the CHWs. While this approach has contributed to improved skills and the quality of their work, it does not bode well for sustainability. A number of factors have contributed to this situation. One, the program, has not had stable leadership. The first Program Manager was hired from the Department of Health with the expectation that she would be instrumental in developing the relationship with the department. Unfortunately this did not happen due to a variety of complex factors. Additionally, there has been high staff turnover. Only one staff member is left who was hired at the beginning of the project. This problemis not only a matter of leadership, however. Recruitment is difficult because this part of Kwa-Zulu Natal is rural and isolated. People who have been recruited with professional training have usually turned down positions for this reason. A major step forward is the hiring of a new Program Manager, Faye Hannah, who has extensive experience in child survival programs. A second factor is that the Department of Health has not followed through with many of their commitments. The two Community Health Facilitators (supervisors) assigned to the project were not provided vehicles for supervising CHWs in the field. They are largely confined to desk work. Consequently the Department of Health is not involved at the community level in the ACSP. Meetings between the ACSP staff and district health officials have been infrequent and have not resulted in true partnership for joint planning. Much of the leadership at the district level has changed, so the current leadership in the department does not have a good understanding of the ACSP project and commitments made during the proposal and DIP stage have not been kept. A third factor is that the local NGOs do not have as much capacity as originally expected to support child survival and HIV/AIDS interventions. An example is the NGO Lethempilo Youth Organization. It trains and supports home-based care volunteers for people living with AIDS. Its leaders are dedicated and hard working, but they function in only one township with a limited 7 number of volunteers. Project staff has to provide transportation and much of the supervision of the volunteers. A fourth factor is that the Department of Health clinics are not as involved with CHWs as expected. Data that are presented later in this report show that referrals between CHWs and the clinic are minimal, interaction with the CHWs is sporadic and there is no reporting system between CHWs and clinics. Recommendation: The new Program Manager work with the appropriate Department of Health authorities to develop a memorandum of understanding and establish a procedure for mutual accountability. Recommendation: The ACSP staff should engage the clinic staff in creating a procedure for meeting regularly with the CHWs for reporting and collaborative planning. It is critical that the clinic staff have ownership of this process. Recommendation: The Program Manager should review the commitments of its NGO partners, especially Lethempilo Youth Organization and the Divisional Salvation Army entities. There should be mutual agreement about their roles and identification of how ACSP can increase their capacity to support child survival and HIV/AIDS interventions in the community. a. Exclusive Breastfeeding The LQAS data indicate that there is little change from the baseline in the percentage of mothers with infants under six months who breastfeed exclusively. The baseline finding is 34% and the mid-term is 31%. The evaluation team followed up this finding in their interviews with CHWs. The team interviewed 42 of the 104 CHWs. They were asked to list the things that were easy for mothers to do, and then the things that were hard for them to do. The behavior that was most frequently mentioned in both items was exclusive breastfeeding. The charts on the following page present the most frequent responses to both questions. 8 Charts 1&2: Behaviors that CHWs identified most frequently as easy and hard for mothers to do.* * Note: CHWs were allowed to give multiple responses and to give the same answer to each question. As seen in the above charts, the CHWs identified exclusive breast feeding as both easy and hard. Upon analysis of these findings the project’s field staff stated that the mothers’ responses might have been affected by the following factors. One, they regard it as easy because it does not require additional equipment (e.g. bottles) and preparation. On the other hand they regard it as hard because many mothers work or go to school and cannot breastfeed during this time. School is also a factor because of the large number of teenage mothers. At this point the project staff does not have data on the percent of mothers who either work or go to school, so it is not possible to know how many mothers are affected. It will be helpful to know what the percentage is of mothers who exclusively breastfeed and have their infants with them all day. This information will give the team a better understanding of the EBF adoption rate. Subsequently they can modify their behavior change strategy and messages if needed. It is possible that the adoption rate is higher among the mothers who have their infants with them all day. It should be noted that the project team has conducted a Doer/Non-Doer analysis of exclusive breastfeeding. The research has been done and the analysis will be completed soon after the mid-term evaluation. The findings from this analysis will also contribute to modifying the behavior change strategy. Recommendation: The project team should monitor EBF adoption rates using the LQAS methodology. When monitoring EBF the project team should add a question about whether the 55 52 45 0 10 20 30 40 50 60 Percent Ex-breast feeding Immunizations Washing hands Easy for Mothers to do N = 42 54 26 23 23 0 10 20 30 40 50 60 Percent Ex-breast feeding HIV testing Home treatments Hygene Hard for Mother to do N = 42 9 mother is able to have her baby with her throughout the whole day. If the answer is no, then they should inquire if it is because of work or school. Recommendation: The Program Manager should find out from La Leche League or Africa Center about their experience and recommendations for mothers who work or are in school. The Zulu program staff thinks that expressing milk would not be culturally acceptable. It will be important to know if someone has evidence for how to address this barrier. b. Diarrhea Control The interventions for control of diarrheal diseases are teaching mothers the signs of dehydration, mixing and using home-made oral rehydration solution and taking the child to the clinic if the child presents danger signs following IMCI protocols. Overall there is good progress in mothers’ knowledge about using ORS and progress in their knowledge about taking children to the clinic in cases where the illness continues for three days. A challenge is mothers knowing that they should both give ORS and take a child to the clinic when diarrhea continues for three days. Following is a presentation and discussion of the mid￾term findings. Unfortunately the baseline KPC did not specifically ask about signs and behaviors in relation to dehydration. The questions in the baseline only asked about recognition of and behaviors related to childhood illness. And the mid-term KPC followed the format of the baseline. Consequently it is not possible to know how mothers recognize and react specifically to dehydration. In order to obtain some indication of mothers’ knowledge the evaluation team asked mothers what they would do if their child under five years old had diarrhea continuously for three days. Between 25 and 30 mothers were interviewed in each one of the five supervision areas. The total interviewed was 121. The question was open-ended thus the answers were given without prompting. Upon giving one answer however, mothers were asked if they did anything else. The results are presented in the following table. Table 2: Mothers’ actions when child has diarrhea for three continuous days. N = 121 (Note: mothers could give more than one response) Actions Percent Response Those who stated give ORT and take to the clinic 23% Those who stated take to the clinic but did not mention ORT 23% All who stated they would take to the clinic 46% All who stated they would give home-mixed ORS 69% Those who stated give ORT but did not mention taking to the clinic 46% Twenty-three percent of the mothers said they would give ORT and take the child to the clinic. This is low, but there is no way to know if this represents progress from the baseline. It is however, a good indicator of progress that over two thirds of the mothers knew about giving 10 ORT. An indication that some progress is being made is that that nearly half of the mothers did know that they should take their child to the clinic. A challenge for the program team is to make sure that the CHWs are communicating both the use of ORT and taking the child to the clinic for danger signs. c. Washing Hands This behavior is addressed separately from diarrhea control because it is considered a critical intervention area in this project. The behavior change message in the DIP was that mothers wash their hand before food preparation, before feeding children and after defecation. The finding from the mid-term survey is that one percent of caregivers report washing their hands after defecation, after attending to a child who has defecated, before feeding children, and before preparing meals with soap. The evaluation team inquired about the barriers to hand washing. Mothers and Community Health Workers were asked to give the reasons why “some mothers” do not wash their hands. The question was asked about other mothers so that the respondent would not need to feel defensive. The following table presents the findings. Table 3: Reasons why mothers do not wash their hands with soap* Reason Mothers (N=121) CHW (N=42) It is not a habit 67% 61% They think it is not important 25% 42% Lack of soap 9% 23% Water not readily available 0 16% *Note: Mothers and CHWs could give more than one answer. It is important to note that mothers and CHWs have similar perceptions about the barriers to hand washing. It is a matter of habit, not the lack of resources. These findings will help the staff team in crafting their behavior change messages and strategies for promoting behavior change. During the data analysis workshop the evaluation team discussed the following recommendations for addressing hand washing. Recommendation: The field supervisors (Community Health Facilitators) should conduct a participant-observer field study of a random selection of CHWs to determine if they wash their hands before preparing meal. Given that the barriers are a matter of habit, an important strategy for behavior change will be one of modeling; CHWs should set an example for the mothers. If the results of this study show that CHWs do not wash their hands before preparing a meal then the ACSP team needs to begin facilitating change among them first. Recommendation: The ACSP team should conduct a Doer/Non-Doer analysis with mothers in order to identify the factors that are associated with the mothers who do wash their hands. These findings will be instrumental in crafting behavior change messages. 11 Recommendation: The ACSP team and CHWs could sponsor community events (festival style, i.e. make it fun!) that feature role plays, music and testimonials centered on critical health behaviors such as hand washing. Socialization is a helpful and creative way to help change habits, especially in situations where there are no resources or cultural taboos. This strategy also breaks up the monotony of repetitive verbal and printed messages. d. Acute Respiratory Infections The health behaviors for this intervention in the DIP are the following: · Continue to feed and offer more fluids, including breast milk, to children when they are sick; · Give children appropriate home treatment for infections; · Recognize when sick children need treatment outside the home and seek care from appropriate providers; · Follow the health workers’ advice about treatment, follow-up and referral. The findings from the midterm KPC survey were that 10% of mothers recognized fast or difficult breathing as a danger sign, but that many reported “cough” as a danger sign. The evaluation team wanted to explore mothers’ perceptions and definitions of cough to better understand these results. The data from the midterm field interviews show signs of progress. As reported below, mothers readily distinguish between symptoms of respiratory illness and have a high level of knowledge of the appropriate actions to take. The evaluation team asked mothers a series of questions about how they handled the most recent episode of respiratory illness in their child. A total of 121 mothers were interviewed, ranging from 22 to 30 from each supervision area. The sequence of questions was as follows. 1. Has your child had a cough recently? 2. If yes, what type of cough was it? 3. Besides cough, did the child show any other symptoms? 4. What did you do for the child? Table 4 on the next page presents the results of the mothers’ answers. These findings generate a number of important observations. First, there is a high incidence of cough in children under five. The reason for this is that it is the height of winter and most homes are heated by poorly ventilated wood or coal stoves. The combination of cold weather and smoke in homes stimulates a lot of respiratory illness. Second, 64% of mothers knew how to distinguish between types of cough. This is something that the CHWs have been teaching the mothers and it is encouraging to see this extent of knowledge at the midterm. Third, in the cases where mothers reported wheezing they could identify related symptoms. It is important to note that mothers were asked open-ended questions, thus they responded based on their knowledge, not because they were prompted. This level of knowledge is also congruent with what CHWs have been teaching. 12 Fourth, the crux of the issue is that mothers take their children to the clinic when wheezing type of cough occurs, and indeed mothers reported that they did so. While this finding is not from a random survey, the fact that such a high percentage of the 121 mothers (from all five supervision areas) reported this behavior is a strong indicator that it is widely practiced. Table 4: Key findings regarding mothers’ knowledge and behavior in managing cough in children under five years old. Question Findings Child had cough recently Yes 75% No 24% No answer 1% Types of cough Dry 49% Wheezing 13% Wet/moist 12% Symptoms present with wheezing cough Fever 42% Not eating well 25% Diarrhea 17% Tight chest/ difficult breathing 17% What mother did when child had wheezing cough Doctor/clinic 92% Traditional medicine 17%* __________________________ *Mothers could give more than one answer. e. Immunizations ACSP team members support the Department of Health by training CHWs in childhood immunizations, collaborating in promoting immunization and creating a system for CHWs to monitor mothers who default in children’s immunization. Overall the ACSP team has made good progress in this intervention. The immunization rate from the midterm KPC is 75%. The rate from CHWs surveillance system is over 90%. It is important to note that within the geographic area of the program there are communities that do not have CHWs. Consequently they have not been reached consistently with child survival interventions. In South Africa the CHWs are hired by the Department of Health, with a salary. Consequently the ACSP team is not free to train CHWs in communities that do not have any. This accounts for the discrepancy between the KPC data and the registries kept by the CHWs. This project has made two important contributions to childhood immunization. One is establishing a family registry that includes immunization. With this system the CHWs are now 13 able to identify defaulters on a monthly basis. When the team’s Community Health Facilitators supervise the CHWs they visit the defaulters’ homes. The second contribution is providing the CHWs with growth monitoring scales and training them in using the children’s Road to Health cards. At the time of growth monitoring the CHWs also review the immunization records and have the opportunity follow up with those who are behind schedule. Data from the family registries demonstrate the effectiveness of these contributions. The following chart presents the immunization rate from the CHWs’ registries for the first quarter of 2005. The monthly fluctuations reflect typical patterns of behavior and the changes in the age of children who are eligible for immunizations. It is encouraging to see the increase in March after a dip in the rate in February. f. HIV/AIDS HIV/AIDS interventions are currently directed towards four populations: seventh grade students; pastors; vulnerable orphans and children (OVC) and persons living with AIDS. Overall the program staff has made good progress with students and pastors, but less progress with OVC and home-based care. Following is a report and discussion of these interventions. Schools The strategy in schools is to target seventh graders for dialogue-based education about HIV/AIDS and on how to prevent its spread. The rationale for seventh graders is that this is the age just before the youth tend to become sexually active. The preventive behavior that is presented in this curriculum is abstinence. The intervention strategy uses recent high school graduates to facilitate learning by using a curriculum called Life Skills. These facilitators are called mentors. They are volunteers, but are given a travel and food stipend. They work in the classroom one hour a week for 6 months. Additionally the ACSP team recruits and trains students from the classroom as peer educators. They facilitate informal discussions and provide social support. At the midterm, the program has been implemented in 13 schools in Mvunyane and 20 in Mondlo (all of the schools with grade seven in these supervision areas). At the time of the midterm school was out of session thus the evaluation team was not able to interview students. The team was able to interview some mentors, peer educators, principals, and teachers. Because school was out the team was not able to interview as many as they would have liked. 96 87 91 0 20 40 60 80 100 Percent Jan-05 Feb-05 Mar-05 Chart 3: Immunization rates of children 11 to 24 months from family registries (N=970) 14 The evaluation team interviewed six principals, seven teachers, ten mentors and seven peer educators. Each group was asked questions regarding their perceptions of students’ behavior and about their own experience as facilitators. Following are the responses of each group. Table 5: Principals’, teachers’, mentors’ and peer educators’ perceptions of change in students’ behavior. N=30 Interviewees Most Important Observed Behavior Changes Principals 1. More open communication about sex and HIV Teachers 1. Open communication about sex and HIV 2. More self control in classroom behavior between boys and girls (i.e. less passing notes, fewer suggestive comments, less flirting.) Mentors 1. Open communication among students about sex and HIV. Peer Educators 1. Boys show more respect to the girls 2. Open communication about sex and HIV It is significant that each group independently observed more open communication among the students. It appears that the Life Skills program has established a good foundation for behavior change. The challenge that lies ahead is to monitor changes in sexual behavior. Recommendation: The ACSP team should implement a pre and post survey on seventh grade students’ attitudes and practices regarding sexual behaviors. Ultimately the success of the program is in the extent to which students change their behavior. The ACSP health information system should track changes in order to determine if the program is making a difference. Principals, teachers and mentors were asked to rate separately boys’ and girls’ attitudes about abstinence on a three-point scale. Not surprisingly, both mentors and teachers believe that girls give a higher value to abstinence. The chart on the following page portrays this finding. The chart also shows a contrasting pattern in how these groups rate boys’ and girls’ attitudes. Girls are regarded as giving a higher value to abstinence than boys. In contrast they believe that boys are much more likely to give abstinence low importance. The Zulu staff on the evaluation team stated that their culture encourages men to demonstrate their manhood through sexual activity. Education about abstinence runs counter to this cultural moray. As a result there are a number of implications about abstinence education. These implications should be addressed by the ACSP team. Specific recommendations are found on the next page. 15 Chart 4: Principals’, teachers’ and mentors’ ratings of boys’ and girls’ attitudes towards abstinence. N=30 0 2 4 6 8 10 12 Number Low importance Moderate importance High importance Low importance Moderate importance High importance BOYS GIRLS Recommendations: 1. Using the same message about abstinence for boys and girls does not address difference in the culture about sexual activity. There should be different messages for boys and girls. 2. Abstinence messages for boys need to address the cultural morays regarding male sexual prowess. 3. Promoting the concept of abstinence emphasizes the “don’t” or the negative message. The focus is preventing disease. Teaching about sex and relationships should also include concepts such as self-respect, respect for others (especially boys/men for girls/women), commitment and role of sex in relationships. Young people should understand the place of sex in a relationship as well as self control for disease prevention. Pastors Another target population in the HIV/AIDS intervention is pastors. ACSP staff sponsored seminars for pastors on the epidemiology of HIV and on service to people with AIDS and their families. A total of XX pastors have been trained. The evaluation team interviewed 12 of these pastors. The team inquired about three areas: the pastors’ attitudes towards involvement in HIV/AIDS ministry, their actual involvement as a result of the seminars and their counseling advice. The results of the survey are presented in Table 6 on the next page. 16 Table 6: Pastors’ perceptions of what should be the church’s role regarding HIV/AIDS Pastors’ feelings towards HIV/AIDS being part of the church Number of Responses The church should not get involved 0 The church’s main task is to pray for people with HIV/AIDS 4/12 The church should send people with HIV/AIDS to receive community and government support 1/12 The church should get actively involved in helping people with HIV/AIDS 11/12 While there are no pre-seminar data, the data in the above table present a positive view of the role of the church. Given that many churches are still uncertain about their response, this project area now has a core group of supportive pastors. In the follow-up questions about their actual involvement in HIV/AIDS ministry, nine of the twelve stated that their churches are involved. They provide encouragement through home visits, physical support (primarily food) and pray for them (either in congregational prayer or one-on-one prayer). Of the three who are not currently involved, two of the pastors say that they plan to get their churches involved. One pastor has no plans. The survey of the pastors also included three scenarios and asked them how they would respond. The following table presents the scenarios. Analysis of the pastors’ responses indicates that they have a good understanding of how HIV/AIDS is transmitted. They were also technically correct in advising how to prevent the spread of HIV from one partner to another. They did not hesitate to advise married couples to use condoms. It is also significant that no pastor included statements of condemnation or rejection of people in the scenarios. The scenario that generated the widest range of responses was the third one that involved unmarried young people. One factor is that youth would not approach their pastors with this type of question. As noted by The Salvation Army Divisional Commander (area church superintendent) this fact is something that needs to be corrected. He would like to see pastors (or Table 7: Counseling scenarios for pastors 1. A woman from your church has been faithful to her husband, but he works in Durban and has not been faithful. What counsel would you give to the woman? 2. A man from your church tells you that he has just learned he is HIV positive and asks you for advice. What would you say to him? 3. A youth from your church approaches you saying that she is in love with her boyfriend. They have talked and have decided they are ready to have sex. What would you advise them? 17 youth leaders) have the kind of relationship with the youth that they would feel free to seek pastors’ advice regarding sex and relationships. A conclusion that the evaluation team made regarding the responses to the third scenario is that pastors do not have a well-thought-out message to promote premarital sex. In analyzing the responses of the pastors it was not that they condoned premarital sex, but that they did not know what to say to the reality that premarital sex is widely practiced. It became evident in the data analysis work shop that the ACSP team needs to address this issue in the pastors’ curriculum. Recommendation: The ACSP team should include scenarios such as the ones used in the mid￾term evaluation in their seminars for pastors. They need to engage the pastors in articulating what they believe and what they believe the Biblical message should be to Zulu youth in today’s culture. As with the recommendations for those who work with the Life Skills program in schools, the messages about sex need go beyond saying “no to sex” to making positive statements about the role of sex in relationships, including respect for self, respect for partners (especially men towards women) and commitment. OVC Care for orphans and vulnerable children is provided by Lethempilo Youth Organization and churches. Additionally a few health committees are in the process of mobilizing their communities to provide care. The Department of Social Welfare provides grants for OVC and the primary intervention is to sign up eligible children. Data from the CHWs’ records indicate that in January 2004, 36% of orphans and vulnerable children receive child care grants. On the other hand, 81% of these children had birth certificates, which is a key prerequisite for obtaining a grant. The bureaucracy for obtaining grants is slow and complicated, especially when the caregiver does not have the child’s birth certificate or the parent’s death certificate. The fact that only 36% of eligible children receive grants, however, is an indication that more effort needs to be placed on following up with these children. The section on capacity building (Section B.2.c.) makes recommendations on engaging local churches in this area. It is important that these children receive broad support from the community, not just from the ACSP and CHWs. g. Revised Measurable Objectives The evaluation team had difficulty in tracking changes in some of the measurable indicators from the baseline to the mid-term. The midterm team is not able to discern if data on questions such as giving more or less fluids refers to incidence of diarrhea, ARI or some other disease. Given this situation the midterm evaluation team recommends changes to the measurable indicators. The following table shows the baseline indicators from the DIP and the recommended changes. 18 Table 8: Revised measurable indicators. DIP Indicators Indicators Modified at Mid-term Percentage of caregivers who know at least two signs of childhood illness that indicate the need for treatment Add to DIP indicator: Percent of caregivers who know at least two signs of dehydrati on in children ages 0 to 59 months. Percent of caregivers who recognize fast or difficult breathing as a sign indicating the need for treatment. Percentage of caregivers reporting increased liquids and increased feeding during child’s illness in the past two weeks Add to DIP indicator: Percent of caregivers reporting increased liquids when a child has episodes of diarrhea. Percent of caregivers reporting continued feeding when a child has episodes of diarrhea. Percentage of mothers of children age 0-23 months who wash their hands with soap/ash before food preparation, before feeding children, after defecation, and after attending to a child who has defecated. Modify DIP indicator: Percent of caregivers of children 0 to 59 months who state that they wash their hands with soap or ash in at least two of the following circumstances: before food preparation, before feeding children, after defecation, after attending to a child who has defecated. The youth abstinence indicators in the DIP should stay as they are. The evaluation team does not recommend any changes. The indicators for HIV/AIDS in the DIP do not make reference to two major program areas: pastors and the Life Skills program for seventh graders. As noted in the discussion above of these areas the ACSP team needs to monitor these programs with measurable indicators. Recommendation: Regarding pastors, the team can collect pre and post data for pastors who attend their training program. Possible indicators can be: 1. Percent of pastors who believe that churches should have a ministry in either HIV prevention or to persons living with AIDS and their families. 2. Percent of pastors whose churches currently have a ministry in either HIV prevention or to persons living with AIDS and their families. Recommendation: The ACSP team should collect pre and post data on students who participate in the Life Skills program. The same instrument that is used with ninth graders can be used with these students. This will give the ACSP three measurement points to assess change. One is the baseline prior to the Life Skills curriculum. The second is immediately after students experience the curriculum and the third is two years later in ninth grade, which is the indicator in the DIP. This will give the ACSP team the opportunity to assess the effect of the program over time. In 19 order to identify students from the Life Skills program, the final KPC survey for ninth graders should include a question asking if the interviewee participated in this curriculum. 2. Cross-cutting approaches a. Community Mobilization The foundation for community mobilization in this program is the Community Health Workers. They are selected by the village or township councils, receive a salary from the Department of Health and are expected to work full time in the community. Their work in the community revolves around home visits. Under the supervision of the ACSP Community Health Facilitators (supervisors/trainers), the CHWs visit every family with children under five. A review of CHW registries indicates that they faithfully do so. Early on in the program the CHWs were equipped with scales so that they could conduct growth monitoring. The rationale was that this tangible and visible activity would serve as a gateway to the community. This has occurred on an individual basis. The data from the health information system demonstrate that the CHWs weigh approximately 90% of the children under five every month. Little community-wide organizing however, has occurred. SAWSO intends to introduce and community mobilization program that they developed in Zambia called Community Counseling. It uses a participatory approach for analyzing problems, posing solutions and creating action plans. A SAWSO staff member from their headquarters in Washington has trained a Territorial Facilitation Team in South Africa who will work with program staff to implement the strategy, including training volunteers from TSA corps and other community leaders to facilitate the process. b. Communication for Behavior Change The behavior change strategy is based on one-to-one interaction between the CHWs and mothers during home visits. The program is using one pamphlet in Zulu that covers IMCI. Flip charts that describe the key interventions have been used in the past but are not used much at this time. A little bit has been done with drama and song, but for the most part the communication technique used in this project is oral during home visits. At the time of the mid-term there are no group learning events being used in this project. One of the factors that have limited the communication strategy is how this component has been managed. The project team has relied on the IMCI Coordinator to direct and implement the communication plan. This cannot, however, be the responsibility of one person. The new Program Manager must get the Community Health Facilitators (field supervisors) more actively involved. They must have major responsibility for training and supporting CHWs in a comprehensive communication plan. (See below for more specific recommendations.) The SAWSO Health Program Officer worked with the team in the fall of 2004 on conducting a Doer/Non-Doer analysis of exclusive breastfeeding practices. The purpose of the technique is to identify practices and beliefs that are associated with those who do breastfeed exclusively and 20 those who do not. The results of the analysis are then to be used to refine behavior change activities. The previous Program Manager was slow in implementing this analysis and at the time of midterm the analysis had not been completed. At the midterm planning workshop the ACSP team made it a priority to finish revising their exclusive breastfeeding activities/messages based on the Doer/Non-Doer analysis. They also committed themselves to do the same analysis for hand washing. As mentioned in the section on community mobilization, SAWSO will send a consultant to develop the community counseling program. While it will contribute to behavior change, it will not necessarily focus on the key child survival interventions of this project. In community counseling the community decides on the problem and poses the solutions. Given that ACSP is committed to facilitating specific behavior change it will need to use many other behavior change strategies. Following is a list of recommendations for this area. Recommendations: 1. As stated above, the field supervisors must have major responsibility for spearheading the ACSP communication plan. This project cannot rely solely on the IMCI Coordinator. 2. The ACSP team must complete the design of their comprehensive behavior change plan. They have begun using the BEHAVE Framework and they should complete the analysis of enabling and conflicting factors and articulate a plan for messages and materials (e.g. flip charts, songs, pamphlets, etc.). 3. The ACSP team could identify and train a group of CHWs to create and implement local behavior change plans. In South Africa child survival projects have an unusual resource in that the CHW are salaried. The ACSP team can do more to maximize this resource of full￾time community workers. There are CHWs who have musical, drama, drawing and leadership skills that can be used. The ACSP team could train and support them in creating area communication plans. They could become “communication specialists” and serve as a resource within the community health system. Thus the communication plan would become the responsibility of the CHWs, not the ACSP team. c. Capacity Building Approach Program Staff At the mid-term all of the program staff has been trained in IMCI. The field supervisors received additional training in IMCI and supervision skills from the IMCI Coordinator. The project has a good system of cross-training so that team members fill in for each other and frequently work together. The Program Manager has made the commitment to revise the job descriptions for several staff members in order to allow for professional growth. For example, just before the mid-term evaluation the project hired a new bookkeeper. She demonstrated a wide range of skills in the community health area and the new project manager will modify her job description so that she can be involved in some of the community health work. Her competency in bookkeeping is such that it is not a full time task. 21 With the staff having good technical skills, the Program Manager needs to concentrate on developing leadership skills, especially with the field supervisors (Community Health Facilitators). The leadership skills that they need are in reference to enabling the CHWs to facilitate community health. A couple of examples are in the areas of health communication (described above), supervision and program planning. They should be able to equip the CHWs and local clinics to set goals and monitor progress, instead of doing it themselves. There is no question that the ACSP team can implement these tasks; the larger challenge is developing their ability to work through others to improve the health of the community. Department of Health Clinics In the partnership between ACSP and the district Department of Health, the role of the Department is to develop the capacity of clinic staff, with the support and follow-up of ACSP. The focus of capacity building was to be IMCI. The reality is that the ACSP team has taken the lead in training clinic staff in IMCI, but its application has been minimal because of a lack of leadership from the Department of Health. At the mid-term the evaluation team interviewed staff at six clinics. In five of the six someone had been trained in IMCI, but training was the extent of their involvement. IMCI is not being implemented as a clinical practice in any of the clinics. None of the clinics have posted clinical care guidelines for IMCI (the IMCI algorithm for assessing a child). Another problem area is the relationship between the clinics and the CHWs. When asked about referral from CHWs, only one clinic stated they had more than seven a week; five stated they had one to six referrals a week; and one clinic had none. The staff in this last clinic stated that they did not even know who the CHWs were in their catchment area. There is no referral form for communication between clinics and CHWs. The ACSP team created one, but it is not being used. Recommendations: 1. The Program Manager must reach an agreement with the district health authorities, in particular regarding the commitment to IMCI. IMCI is a national policy and the Program Manager should facilitate discussions on how ACSP can help the Department of implement this strategy. 2. The ACSP team must facilitate planning meetings between CHWs and clinic staff regarding a stronger collaboration between the two. Each clinic and its CHWs should have measurable goals (related but not limited to the project’s goals), a regular planning and scheduling meeting (preferably monthly) and a patient referral system. As stated in the previous section the role of the ACSP team should not be to implement these tasks, but to facilitate the process of engaging the clinics and CHWs to complete these tasks. Local NGOs Functionally, the ACSP project area has three local NGOs: Lethempilo Youth Organization, The Salvation Army Mountain View Hospital and local churches (including TSA corps). The ACSP team has collaborated with Lethempilo in their home-based care program. Lethempilo however, relies on volunteer staff and only functions in Mondlo (one of the program’s five supervision areas). The greatest assistance that ASCP can give is to help Lethempilo apply for grant funding. 22 One benefit of collaborating with ACSP in a funding application is that ACSP funding and program commitments can be used to leverage funding that would go directly to Lethempilo. TSA’s Mountain View Hospital will have a leadership change that will enable it to participate in the project. The intention is that the hospital becomes responsible for the program in one of the project’s supervision areas. Their participation in the project will create the capacity to continue community health work after the USAID funding ends. A third type of local NGO is churches. There is a wealth of churches scattered throughout the province. Through the pastors’ training program this project has the potential of creating a culture of ministry to the community (as opposed to just its membership). The participation of the Salvation Army Divisional Commander (or superintendent) in the mid-term evaluation generated a commitment on his part to do more to engage the Salvation Army churches in community health. The Salvation Army clearly understands the difference between ministering to people in need and proselytizing, thus its churches will be important collaborators in this program. At the end of the evaluation the team leader reported to the Salvation Army’s national leadership council. At this meeting the national leader (Territorial Commander) reiterated the organization’s intension of being involved in community health. He stated that the Territory will look to this program for leadership in engaging churches in other parts of the country. e. Sustainability Strategy Upon review of the sustainability indicators in the DIP the evaluation recommends that the indicators be revised to reflect how the project has developed over the last year and a half. Following are the recommended indicators. By the end of the program: 1) 80% of the pastors/churches that attended the pastors’ training program will have in operation at least one of the following; a) implementation of a home-based care program for persons living with AIDS; b) implementation of a Life Skills program for either youth in their church or youth in their community; c) implementation of a deliberate and structured program for OVC; d) Sponsorship of a voluntary testing program for all community members. 2) 90% of the department of health clinics will have a functioning and documented; a) CHW referral system, b) A local plan with measurable child survival goals and an action plan for meeting the goals, in collaboration with CHWs. 3) 40% of the schools where the Life Skills curriculum has been implemented will have a Mentor who is from the community where the school is located. 23 C. Program Management 1. Staffing This project has experienced substantial staff turnover. Only one person has been on staff from the start of the project. In order to bring stability to the staff SAWSO has contracted with Faye Hannah MPH, to serve as Program Manager. Ms Hannah has over five years experience in working with SAWSO in child survival projects. Her professional degree, experience with child survival and knowledge of The Salvation Army equips her to give good leadership to the project. As discussed in the previous section on capacity building, the current project staff has good technical knowledge. The challenge for staff development is that the staff to learn how to mobilize CHWs and their other partners to implement community health rather than doing it themselves. The SAWSO technical advisor, Claire Boswell, will need to continue to maintain monthly communication with the project manager on staffing and program management issues. They both need to be aware immediately of staffing problems and address them as soon as they arise. The project cannot afford any more staff changes. A good team is now in place and it needs to provide continuity for the remainder of the funding period. 2. Health Information System One of the important accomplishments of this project has been the installation of a child survival data tracking system for the CHWs. Prior to the project the CHWs had no functioning information system. The ACSP team created a household card and worked intensively with the CHWs to implement the system. The project’s health information system now tracks child survival variables for all individual households that are served by CHWs. The major benefit of the household card has been in monitoring immunization defaulters. As discussed in the immunization section this system has resulted in an immunization rate of over 90% in the communities that have CHWs. The health information system, however, does have areas for improvement. The most important limitation is that the data from the system are not used for program planning, except in the case of immunizations. Data are consolidated and aggregated monthly but are not used in the monthly staff meetings. Additionally no indicator tracking reports are shared with the clinics and the Department of Health. A second limitation is that CHWs do not have a way to easily review the status of families that they monitor. The household data are kept on separate sheets of paper so CHWs do not have an efficient way to visually scan the health indicators for all the families under their care. A specific problem that is an outgrowth of the above is that there is no mechanism for following up on children with diarrhea and ARI. Because health data are on separate cards they cannot quickly identify which families reported an illness and what was the outcome. Reports of these illnesses only occur on the monthly consolidated report from the CHWs with no reference to the 24 household or child. The number of cases of diarrhea in the past month, for example, is reported from memory. Recommendations: 1. The Program Manager must include a review of the health information system at each monthly planning meeting. The data should be used for setting quality improvement goals and then monitored at subsequent meetings. 2. The ACSP team must create a graphic reporting tool for communicating the status of the project with the provincial department of health and the individual clinics. The ACSP team was trained in using LQAS for program monitoring at the mid-term. They should repeat it at least semi-annually with a limited set of indicators and include these data in their reports. 3. The ACSP team should consider substituting the individual household card with a registry book that lists all families and children under five followed by a grid that use symbols and check marks to indicate the status of health status variables for each child. These registry books are the most common registry that this evaluator has seen in child survival projects. It will cut down dramatically on the amount of paper that is used and makes monthly reporting more efficient because information on multiple families is on one page. And it is more likely that the CHWs will continue to use a registry book after the project is done rather than the individual household cards. 4. The ACSP team must set up a system where the CHWs set goals for their community and tract progress using their own data. CHWs should have graphs of immunization rates, ORS, etc, and report monthly progress to village headmen and township councils. These graphs should be placed where mothers can see them and visually monitor their progress. In other projects the graphs have been posted at clinics, schools, headmen’s houses, CHWs’ houses, and the village market center. CHWs and village leaders need to decide on the best place for them. D. Additional Issues as identified by the evaluation team No additional issues were identified by the evaluation team. E. Conclusions and recommendations Major conclusions Following is a summary of the conclusions contained in this report. Note that recommendations have been made throughout the report. They are linked to specific data and observations and thus are not repeated in this section. 1. Solid progress is being made in immunizations, control of diarrheal disease and HIV/AIDS prevention among young people. 2. The data on ARI are mixed. The midterm KPC survey indicates negligible change but the midterm field survey indicated a high level of behavior change among mothers who are monitored by CHWs. The ACSP team will monitor this indicator more closely in its surveillance system. 3. Progress in exclusive breastfeeding and hand washing is limited. 25 4. The CHWs are diligent in keeping records and visit all targeted homes once a month. The project made a major contribution in equipping and training the CHWs in managing a household surveillance system. 5. The project has mobilized HIV/AIDS mentors and peer educators and pastors. This is an important contribution to expanding community involvement beyond the CHWs. 6. The collaboration with the district Department of Health is limited. The Program Manager will need to concentrate on strengthening this partnership. 26 F. Results Highlights Of the 121 mothers who are interviewed during the midterm field evaluation, 69% said that they give ORT when their child has diarrhea. During the field evaluation 92% of mothers who had a child with a “wheezing” type of cough took the child to the health center. Over 90% of the children in the CHWs family registries are up-to-date on their vaccinations. 96 87 91 0 20 40 60 80 100 Percent Jan-05 Feb-05 Mar-05 Chart 3: Immunization rates of children 11 to 24 months from family registries (N=970) The percent of ninth grade boys who state they are virgins increased from 48% at baseline to 63% at the midterm. The evaluation team interviewed six principals, seven teachers, ten mentors and seven peer educators. Each group was asked questions regarding their perceptions of students’ behavior and about their own experience as facilitators. As shown in the following table, it is significant that each group independently observed more open communication among the students. Interviewees Most Important Observed Behavior Changes Principals 1. More open communication about sex and HIV Teachers 3. Open communication about sex and HIV 4. More self control in classroom behavior between boys and girls (i.e. less passing notes, fewer suggestive comments, less flirting.) Mentors 1. Open communication among students about sex and HIV. Peer Educators 3. Boys show more respect to the girls 4. Open communication about sex and HIV